Life Continues
* January 27, 2009 many more words than listed before....I have not been able to keep up with his progress. Dra can now read 20 words (that we, considered to be "normal", can test) out loud and is writing!
* We will be adding to his I.E.P. in March, personal safety and emergency response. This is due to his enormous love, affection and friendliness for people. He is innocent and pure however, he is getting older and not all people want a hug. This summer I was asked, "Does Dra have an emergency response?" This really made me think! I really need to have this in place.
* Remained off med's until August 2009, Dra started having seizures during the night while sleeping, they only happened at night not during the day. Eeg showed some abnormal activity. Started Depakote in August 2009, we have a 2 year plan to stay on meds and ween off again.
I will update this when I get time, much more has been going on since I wrote this...2010 through 2015 have been very challenging to say the least
About Us
- A Child Born with Angelman Syndrome
- I put this web blog up for my boy, he's my "Angel", my family and friends. To encourage parents, grandparents, legal guardians and care givers to advocate for their child, or the child they care for. To help enlighten the public about Angelman Syndrome. Possible links to finding and getting the necessary help. The challenges we go through, trying to get help for a child born with a genetic disability or any other disability. To enlighten school districts about Angelman Syndrome. These are very intelligent people who need extra help. Whether it be transportation needs, communication devices or on hands help. They are not to be hidden from society “shipped out of town” for their living or educational needs.